Have you ever had friends reject you because they were apparently incapable of meeting you where you were at? Had friends that made you feel like everything you ever said fell on deaf ears? It has happened to me more times than I'd like to admit, but the latest one hurt the most. Maybe because of all the ones that had come before, but I'm not doing a good job of getting over this one . It fed my fears and insecurities just when they were starting to heal. So, let me speak what I need spoken to myself: It's okay to be broken, you won't always be broken. It's okay to question and search, it means you're not giving up. It's okay to vent, it means you're trying to work through everything. It's okay to be silent, it means you're tired and in need of the rest that will help you heal. It's okay to not be okay people! It is so easy to give up. Especially when Christian friends treat you worse than non-Christian...
Non epileptic seizures are not curable, nor do doctors fully understand their origin. Therefore, it is up to me to figure out what works and what doesn't. Here are a few tricks I have learned that work for me... Distraction can be a good word . Managing stress is often a balancing act and sometimes I need to choose to be distracted from tasks that stress me out at that moment. 10 minutes or an hour can make a world of difference when I switch to a task or activity that does not stress me out. Regularly practicing this helps me avoid multiple seizures. Physical activity helps . I know people say this all the time, but physical stimming, dancing, walking, bike riding, any kind of physical movement really does make a difference. Sometimes I can't do much activity because my muscles are too weak, but whatever level I can manage helps me process my thoughts by physically releasing my emotions in this way. You need a support system. Honestly, embarrassment and panic w...
There is little I like less than intermittently being unable to walk. I just spent two days painfully using a cane to walk. I wish I had a wheelchair to get around in for these moments but neither my house or work has wheelchair access. Using a cane when your legs don't want to hold you up is so painful. The palms of my hands, my fingers, my wrists, my arms all hurt from holding me up for two days. Yesterday morning I pretty much slid down the ladder from our loft bed to go to the bathroom, which is currently in a different house because ours is out of order. When I reached the steps to my tiny house on the way back I literally sat down and dragged myself up them. I was so exhausted when I made it inside I just sat on the floor with my head on the couch crying. This is life. This, apparently, is Porphyria. It hurts to be this physically weak and I hate feeling useless . When you suddenly can't walk and you don't know how many days the muscle weakness will c...
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