Posts

Showing posts from December, 2020

jumping through hurdles

Image
 Porphyria.  When my GP first told me that he was convinced that I have it 6 years ago, I didn't know what that meant.  Today, I still don't know if I actually have it. 1 out of 3 tests was positive but it's rare and no one but my GP will take the idea seriously. So, honestly I gave up. For a few years now. I had one awful year of test after test that nearly damaged my nerves and aggravated my symptoms until all I could do was cry. The pain was unbearable and I was just...finished. Doctors didn't believe me. They told me to see a therapist. So I did. It didn't change anything.  If I do have Porphyria, as my GP thinks, it would explain everything . It would explain the pancreatitis doctors thought I had until my follow up appointment when they realized they had misdiagnosed the problem and had no explanation to offer me. It would explain my seizures and how they didn't show up on the EEG because they aren't an electrical imbalance, but actually neurotoxins in